About HeartLife Foundation
HeartLife Foundation is North America's leading patient-led cardiovascular organization and a registered Federal Charity. Founded and led by patients, we raise public awareness of cardiovascular diseases, empower patients, families, and caregivers through education and support, and advocate for better care for everyone.
What began as a heart failure organization has evolved into a full-fledged patient-led cardiovascular charity, because all roads lead to heart failure. Today we connect patients to the latest research, innovations, and treatments, and work to create a future where everyone affected by cardiovascular disease has access to the care they need.
加入我们改变生活。 #itsaboutlife — not failure.
加入我们我们的使命
The HeartLife Foundation is a patient-driven charity whose mission is to transform the quality of life for people living with cardiovascular diseases by engaging, educating, and empowering a global community. We aim to create lasting solutions, drive innovation, and build healthier lives for patients, caregivers, and families worldwide.
我们为什么这样做
An estimated 800,000 people in Canada are living with heart failure, with 100,000 new diagnoses each year (Canadian Heart Failure Society). Heart failure remains the final destination for many cardiovascular diseases, underscoring the importance of addressing the entire cardiovascular continuum. This condition costs the Canadian healthcare system over $2.8 billion annually, with the majority of these funds spent on acute care.
Research shows that effective patient engagement improves clinical outcomes, reduces hospitalizations, increases patient self-efficacy, and enhances overall quality of life. Yet, despite these proven benefits, few organizations exist to help patients navigate cardiovascular diseases, provide education and support for patients and families, and advocate for access to care and innovative treatments.
The HeartLife Foundation was created to address this critical gap, expanding our mission to cover all cardiovascular diseases while staying true to our roots, because all roads lead to heart failure.
80万
Canadians living with heart failure
100,000
new heart failure diagnoses every year
$2.8B+
annual cost to Canada's healthcare system
Source: Canadian Heart Failure Society
我们的目标
我们的目标是与患者、医疗保健利益相关者、政府和行业合作：
- 为加拿大各地心血管疾病患者发出强烈、批判的声音；
- 提高公众对心血管健康的认识，倡导为所有患者提供更好的护理；
- 与利益相关者合作，确保患者能够获得最新的创新研究、疗法和治疗方法；
- Mentor, support, and guide patients and families through their healthcare journeys;
- Educate and empower patients to manage their health and well-being effectively;
- Build a national network of cardiovascular advocates, connecting local and regional communities to amplify our collective voice.
认识团队
HeartLife 由患者创立，为患者服务。本页上的人都患有心脏病：恐惧、治疗、康复。他们已经联手，因此没有其他人会毫无准备地面对这一情况。
Jillianne Code, PhD
联合创始人兼总裁
Jillanne Code 博士是两次心脏移植接受者、加拿大学习机构研究主席和 UBC 副教授。她是哈佛大学前博士后研究员和 HeartLife 基金会联合创始人，是患者参与和健康倡导方面的领导者、主题演讲者、屡获殊荣的教育家以及 heartfailuretoharvard.com 的博主。她的旅程也是专题纪录片《我破碎的心》的主题，该纪录片在圣莫尼卡国际电影节上获得了荣誉奖。
Marc Bains, BBA
联合创始人兼执行董事
马克·贝恩斯 (Marc Bains) 是一位心脏移植受者、心力衰竭幸存者和患者倡导者。他是加拿大心脏功能联盟 (CHFA) 的共同领导者，该联盟是一个由 200 多名科学家、临床医生和患者合作伙伴组成的国家研究网络，共同努力改变加拿大各地的心力衰竭护理。通过 HeartLife，Marc 推动全球患者宣传和心脏健康普及。他为国家和国际心血管倡议提供建议，经常发表主题演讲，并因其领导和宣传工作而获得奖项。
Sean Virani, MD, MSc, MPH, FRCPC
医疗总监、董事会成员
Sean Virani 博士是加拿大心力衰竭心脏病专家和医疗保健领导者。他在省级和全国范围内担任重要职务，包括在加拿大心血管协会。他的工作重点是卫生政策、系统重新设计和护理质量。
Jenny Milne
社区参与经理
Jenny 在 23 岁时被诊断出患有心力衰竭，并在 24 岁时接受了二尖瓣置换术。现在，她通过在 HeartLife 基金会的宣传工作，分享自己的旅程，帮助他人感到被看到、被支持和充满希望。
Jackie Ratz, BA Hons
HeartLife 女性经理
Jackie 在 24 岁时被诊断出患有癌症，在 44 岁时患上心脏病，在 47 岁时患上心力衰竭。她于 2017 年创建了一个女性 Facebook 群组，并于 2024 年推出了 Life In Hearts 电子杂志。她现在与 HeartLife 合作，为女性赋权。
Rhonda E. Monroe
HeartLife 美国负责人
朗达 (Rhonda) 是一名心血管患者倡导者和复杂心脏病的幸存者，领导 HeartLife 的美国战略和扩张，推进基于证据的护理，改善结果，并通过全国认可的教育和宣传解决差异。